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Editorial Open access Sep 2026

Addressing unmet needs in rare diseases: A patient-centred vision through INFORM-RD

This perspective paper outlines the conceptual foundations of the INFORM-RD research project (a patient-informed clinical platform to inform patient-centred decision-making for rare diseases), embedded at KU Leuven, Leuven Institute for Rare Diseases and University Hospitals Leuven, Belgium.

K. Demesure, Lien Beckers, Wendy Vansteenkiste et al. · 0 citations

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