Strengthening rare disease response in the community of Portuguese-speaking countries: a position paper on digital health innovation and international cooperation
Rare diseases (RDs) affect millions across the Community of Portuguese-Speaking Countries (CPLP), yet fragmented governance, uneven diagnostic capacity, and limited data interoperability constrain timely diagnosis and access to care. Anchored in the first-ever World Health Assembly (WHA) resolution on RDs, this positio...