Chief Data Officer, Genome Canada

A Review of Genomic Data Holdings in the Atlantic Provinces

Genomic datasets exist in Canada; however, many are inaccessible because they are held by individual researchers on institutional servers or by third-party sequencing companies abroad. As a result, the genomic evidence needed to evaluate new therapies is often difficult to find. Genome Canada is working to improve data accessibility through the Canadian Precision Health Initiative and the Pan-Canadian Genome Library. The Atlantic Cancer Consortium and Atlantic PATH have also built federated models with formal access processes.