OBJECTIVE
Existing patient-reported outcome (PRO) measures for systemic sclerosis (SSc) have important limitations, including inadequate coverage of early disease and limited inclusion of diffuse cutaneous (dcSSc) and limited cutaneous (lcSSc) subtypes. This paper reports on the development of two PRO measures for earl...
George J. Greene, C. Perschon, Emilie Jaeger et al.· Arthritis care & research· 0 citations
473
Background:
Misaligned perceptions between patients with cancer and their providers regarding the importance of fertility may impact oncofertility care delivery and experiences, yet empirically measured concordance remains an important gap. We evaluated concordance in the perceived importance of fertility m...
J. Stal, Se Eun Kim, Ashlesha A. Patel et al.· JCO Oncology Practice· 0 citations
How PROs are used in MS clinical care is determined and insights into instruments, purposes, facilitators/barriers, and impact are gained to gain insights into instruments, purposes, facilitators/barriers, and impact.
M. Kuharić, C. Nowinski, C. Perschon et al.· Multiple Sclerosis· 0 citations
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