Editorial
Open access
Sep 2026
Addressing unmet needs in rare diseases: A patient-centred vision through INFORM-RD
This perspective paper outlines the conceptual foundations of the INFORM-RD research project (a patient-informed clinical platform to inform patient-centred decision-making for rare diseases), embedded at KU Leuven, Leuven Institute for Rare Diseases and University Hospitals Leuven, Belgium.
K. Demesure, Lien Beckers, Wendy Vansteenkiste et al.
· Therapeutic Advances in Rare... · 0 citations