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Kamlesh B. Patel

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Review Open access Sep 2026

Making Patient-reported Outcome Measures Patient-friendly: Applying “Patient-reported Outcomes Tools: Engaging Users and Stakeholders” Guidelines to a Graphical “Report Card” for Cleft Outcomes

Background: Patient-reported outcome measures (PROMs), such as the CLEFT-Q, provide valuable insights into the psychosocial and functional well-being of patients with cleft lip and/or palate. Ideally, PROM data should not only inform clinicians and researchers but should also be shared back with patients and families;...

Elaine Lin, Marina S. Sawires, Katie Brown et al. · 0 citations

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