Making Patient-reported Outcome Measures Patient-friendly: Applying “Patient-reported Outcomes Tools: Engaging Users and Stakeholders” Guidelines to a Graphical “Report Card” for Cleft Outcomes
Background: Patient-reported outcome measures (PROMs), such as the CLEFT-Q, provide valuable insights into the psychosocial and functional well-being of patients with cleft lip and/or palate. Ideally, PROM data should not only inform clinicians and researchers but should also be shared back with patients and families;...