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Author

L. Marelli

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3 papers indexed here

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Open access Aug 2026

Selective visibility in datafied states: Examining the absence and presence of the European Health Data Space.

In 2025, the European Union (EU) adopted the European Health Data Space Regulation (EHDS)-a new legal framework for health data. Beyond enabling patient-level and cross-border access to health data for medical care, the EHDS also establishes infrastructures and governance mechanisms oriented to promoting health data re...

J. Donia, K. Hoeyer, T. Reintjes et al. · 1 citation
Review Open access Sep 2026

The 2025 European health data space regulation: implementation challenges in harmonising opt-out rules for reusing health data.

BACKGROUND In 2025, the European Health Data Space (EHDS) entered into force. A key objective of this landmark European Union (EU) health policy is to facilitate international biomedical research by harmonising privacy rules on data reuse. REFORM CONTENT A central political disagreement in the preparation of the EHDS...

A. Martani, Lea Skovgaard, Jonas J. Neubert et al. · 0 citations
Open access Aug 2026

Can Canada learn from the European Health Data Space?

Federal, provincial, and territorial governments in Canada are increasingly committed to promoting health data access and use. The European Union has advanced a bold vision for health data integration with the European Health Data Space (EHDS) Regulation, which entered into force in March 2025. As the first data space...

J. Donia, K. McGrail, L. Marelli · 0 citations

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