Open access
Sep 2026
Socioeconomic status and resilient coping in rare disease patients: the chain-mediating roles of social support and family resilience
In China, over 20 million individuals live with rare diseases (RDs), yet they continue to face systemic challenges including limited awareness among healthcare professionals, high misdiagnosis rates, diagnostic delays, and poor access to medications. Strengthening patients’ resilient coping capacity is vital to i...
Shen'ao Wei, Wen-Shan Zhou, Xin'yi Zhu et al.
· Orphanet Journal of Rare Dis... · 0 citations