Open access
Jul 2026
Evaluating the Quality and Impact of Online Patient Forums in Genomic Data Governance
A series of online DFs that were conducted to explore how patients can be involved in the governance of a genomic data archive (GDA), the German Human Genome‐Phenome Archive (GHGA) were evaluated.
Apondo Eric, Schickhardt Christoph, Andrea Züger et al.
· Health Expectations · 0 citations