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Mônica Locatelli

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Sep 2026

Biobanks and Patient Representatives Together in a Participatory Process: From the BBMRI.it Informed Consent Matrix to the Informed Consent Model of TNGB-Fondazione Telethon Network of Genetic Biobanks.

INTRODUCTION Over the last decade, European Regulations have altered the landscape of the ethical, legal, and societal implications (ELSI). In 2017-2018, the BBMRI.it Common Service (CS) ELSI led two working groups on informed consent (IC) involving key biobanking stakeholders (i.e., patients, biobankers, research inst...

Sara Casati, Chiara Baldo, Laura Casareto et al. · 0 citations

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