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Sponsored Artificial Intelligence: A Modern Approach, Global Edition Artificial Intelligence: A Modern Approach, Global Edition

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Nicolás Schöngut-Grollmus

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Open access Aug 2026

Rare Diseases as Epistemic Objects: Exploring the Moral Role of Health Systems.

This article explores how rare diseases reveal the moral and epistemic foundations of healthcare systems. Based on narrative interviews with 11 Chilean patients and 10 professionals, this study shows how the absence of standardised protocols-such as clinical guidelines, treatment pathways and referral standards-exposes...

Nicolás Schöngut-Grollmus, Dolores Steverlynck, Fernanda Manríquez-Castillo et al. · 0 citations

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