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Author

Tullio Messana

2 papers indexed here

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Review Open access Aug 2026

From first seizure to specific antiseizure medication in Dravet syndrome: Quantifying delays in the DS'coverED study

Abstract Objective Dravet syndrome (DS) is a rare early‐onset developmental and epileptic encephalopathy with persistent delays between seizure onset and diagnosis. The DS'coverED study aimed to characterize current diagnostic timelines by examining each step and its duration, identifying residual barriers, and actiona...

Loucas Christodoulou, María Ballarà-Petitbò, Sergio Aguilera Albesa et al. · 0 citations
Open access Sep 2026

Living with developmental and/or epileptic encephalopathies: exploring health-related quality of life in children, youth, and their families

Attention to non-seizure outcomes in Developmental and/or Epileptic Encephalopathies (DEs, EEs, DEEs) is growing, and there is increasing interest in understanding key determinants of health-related quality of life (HRQoL) in this population. This study investigates personal and family HRQoL in a real-world pedia...

L. Bergonzini, F. Sperandeo, S. Lelli et al. · 0 citations

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