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Sep 2026

Even Resourceful Parents Lack Access to Ethics-Informed Resources.

AbstractEthics resources have the potential to help parents of children with medical complexity understand and navigate ethics concerns relevant to their child's care. This study conducted 28 semi-structured individual interviews with parents of children with chronic critical illness to learn about current ethics resou...

Meaghann S. Weaver, W. Sveen, Caitlin McInerny et al. · 1 citation
Review Sep 2026

Understanding a Clinical Ethics Consult: Survey of Parents.

Pediatric ethics consultation is not a commonly recognized or utilized resource for families facing medical complexity and ethical challenges, and more needs to be understood about how best to meet patient and family needs via ethics consults.

V. Madrigal, Kathryn Detwiler, R. Seltzer et al. · 0 citations

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