Aug 2026· Current Urology Reports· Vol 27· 0 citations· 80 references
Medicine
TL;DR
This narrative review aims to summarize the contribution of population-based cancer registries, hospital-based clinical registries, and administrative healthcare databases to the understanding and management of prostate, bladder, renal, and other genitourinary malignancies.
An overview of the landscape of major U.S. neuro-oncology data resources is provided and how these datasets are used in contemporary research is evaluated, including population registries, clinical data networks, federal and consortium research cohorts, institutional datasets, specialized resources, and artificial inte...
Anjali Kapoor, A. Alyakin, J. Markert et al.· Journal of Neuro-Oncology· 0 citations
Well-designed prospective, longitudinal registries collecting broad and deep real-world data complement RCTs, inform Health Technology Assessments, and fill knowledge gaps by creating treatment transparency, addressing evidence gaps, and providing realistic outcome expectations for the heterogeneous populations in rout...
M. Jänicke, S. Dille, M. Frank et al.· ESMO real world data and dig...· 0 citations
Immunohistochemical biomarkers, particularly CK7, AE1/AE3, CAM5.2, and EGFR, hold significant prognostic value in RCC spinal metastasis and can help stratify patients into high- and low-risk groups, and integrate into tree-based machine learning models provides interpretable data-driven decision tools to support person...
Joseph Rajasekaran, Xinlan Yang, A. Ghaith et al.· Journal of Neurosurgery : Sp...· 0 citations
Integration of longitudinal clinical data with molecular profiling enabled characterization of real-world treatment patterns, long-term outcomes, molecular subtypes, risk-of-recurrence, and the somatic mutational landscape in this population-based cohort.
L. Saal, H. Dalal, P. Meng et al.· medRxiv· 0 citations
This White Paper written by the Global Lymphoma Registry Alliance (LyRA) discusses the importance and value of lymphoma registries for different stakeholders as well as benefits of forming a global alliance of the registry network.
Eliza A. Hawkes, E. Chung, M. Bishton et al.· Haematologica· 0 citations
This perspective examines the Australian population-based cancer registry landscape, highlighting its strengths, untapped potential, and critical gaps and outlines priority enhancements required to realise a robust, whole-of-population cancer medicine surveillance system that can inform clinical practice, policy, and s...
B. Daniels, N. Meagher, J. Ruiz et al.· ESMO real world data and dig...· 0 citations
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