Awareness and Perceived Importance of Genetic Counseling in the Prevention and Management of Genetic Disorders among Residents of Derna District, Libya
Abstract
Purpose: Genetic counseling plays an important role in identifying individuals and families at risk of inherited disorders and supporting informed reproductive and healthcare decisions. In Libya, evidence regarding public awareness and attitudes toward genetic counseling remains limited. This study assessed awareness, attitudes, and perceived barriers related to genetic counseling among residents of Derna District. Materials and Methods: A descriptive cross-sectional study was conducted among 278 participants aged 17–45 years in Derna District, Libya. Data were collected using a structured questionnaire covering sociodemographic characteristics, awareness and self-rated knowledge of genetic counseling, attitudes toward its use, and perceived barriers to access. Data were analyzed using SPSS version 26.0 and summarized using descriptive statistics. Results: The mean age of participants was 24.65 ± 4.70 years; 79.9% were female and 93.5% had university-level education. Overall, 58.3% had previously heard of genetic counseling, while 65.5% rated their knowledge as moderate, good, or excellent. Most participants considered genetic counseling important in preventing or reducing the risk of genetic disorders (90.6%), and 90.3% stated that they would consider undergoing counseling if recommended by a physician. In addition, 79.1% supported premarital genetic counseling. The most frequently reported barriers were fear of results (39.9%), lack of awareness (30.9%), high cost (20.1%), and cultural beliefs (18.0%). Conclusion: Participants demonstrated generally favorable attitudes toward genetic counseling, although important gaps in awareness and several psychosocial, financial, and cultural barriers remain. Targeted public education, culturally appropriate communication, and improved access to affordable genetic counseling services may support informed reproductive and healthcare decision-making in Derna District. (Open J Biomed Res 2026;5:131-138)