Patient experiences and unmet needs in diagnosis and treatment of metastatic colorectal cancer: results of a US survey

Abstract

ABSTRACT Background Metastatic colorectal cancer (mCRC) can impact patients beyond their physical health. We conducted a survey to evaluate patient perspectives on care and treatment experience. Methods The survey was conducted by The Harris Poll in the United States. Adults with mCRC were recruited via online panels and patient advocacy groups. Sampling precision was measured via a Bayesian credible interval; data were accurate to within 5.3% points (95% confidence level). Results Of the 344 respondents, 46% identified as non-Hispanic White, 25% as non-Hispanic Black/African American, and 22% as Hispanic; the mean age was 56 years. Overall, 31% reported that their mCRC diagnosis was delayed, with 83% wishing more information had been provided by their health-care provider at diagnosis. Mental health resources were difficult to access for 53% of the respondents and 88% experienced financial impacts because of their mCRC diagnosis. Furthermore, 49% reported negative impacts from health inequities affecting their care. Overall, 67% of the respondents wished for more power in treatment decision-making. Conclusions The survey highlights key unmet medical and non-medical patient needs in mCRC care. Access to informational resources, including for financial assistance, and a greater emphasis on shared treatment decision-making would help patients feel valued and improve their mCRC experience.