Lived Experiences Following Sepsis: Burden, Challenges, and Care Needs - A Qualitative Study
TL;DR
The findings highlight the need to better recognise and respond to longer-term health needs following sepsis and to develop coordinated, accessible approaches to ongoing support in Ireland.
Abstract
Background Sepsis is a life-threatening medical condition caused by the bodys extreme response to an infection. It can have lasting physical, cognitive, psychological and social consequences that extend beyond the acute illness. However, limited research has explored how people with a history of sepsis and their families experience these longer-term consequences and engage with healthcare services in Ireland. Methods A qualitative study was conducted using semi-structured interviews with 21 participants, including 14 people who had personally experienced sepsis and seven family members of people affected by sepsis. Participants were recruited through professional networks and a sepsis charity organisation in Ireland. Interviews were conducted by telephone or Zoom between May and June 2026, audio-recorded and transcribed verbatim. Data were analysed using Braun and Clarke's reflexive thematic analysis. Results Five themes were identified: (1) recovery - a prolonged journey of physical & cognitive rebuilding; (2) navigating a recovery journey: lack co-ordination and integration; (3) continuity of support was uneven and often depended on individual healthcare professionals; (4) recovery reshaped family roles, work and everyday life; and (5) participants suggested a more coordinated approach to recovery. Participants described persistent physical, cognitive and psychological difficulties, alongside substantial effects on family responsibilities, employment and everyday activities. While some participants experienced valuable support from individual healthcare professionals, many described fragmented services, limited information about recovery and uncertainty about where to seek ongoing support. Conclusion Individuals with a history of sepsis and their families described substantial and ongoing consequences and variable experiences of longer-term care. The findings highlight the need to better recognise and respond to longer-term health needs following sepsis and to develop coordinated, accessible approaches to ongoing support in Ireland.