Skip to content

Determining the experiences of parents of children with attention deficit hyperactivity disorder: The photovoice method.

Aug 2026 · Journal of pediatric nursing · Vol 91, pp. 127-136 · 0 citations · 49 references
Medicine

Abstract

Purpose

To explore how parents of children with attention deficit hyperactivity disorder (ADHD) describe and visually represent their caregiving experiences through photovoice.

Design

AND

Methods

This qualitative descriptive study was conducted from May 15 to November 15, 2025, at the child and adolescent psychiatry outpatient clinics of a state hospital. Twelve parents were recruited through purposive sampling until data saturation. Data were generated through participant-produced photographs, written explanations, individual photo-elicitation interviews, and group discussions. Visual and textual data were analyzed using inductive qualitative content analysis.

Results

Ten mothers and two fathers participated; the mean parent age was 39.8 years. Among the children, 66.7% were boys, and the mean age was 8.9 years. Four themes emerged: parenting burden and psychosocial difficulties, stigmatization, service access and home-life difficulties, and coping and resilience. Parents described constant supervision, emotional exhaustion, social exclusion, and efforts to manage systemic and social challenges.

Conclusions

Parents experienced interconnected caregiving burden, stigma, and service-related difficulties while drawing on coping and resilience. Photovoice made visible experiences that may be difficult to communicate verbally. The findings may inform family-centered pediatric nursing support. PRACTICE IMPLICATIONS Pediatric nurses may use these findings to assess caregiver strain, provide stigma-sensitive education, support care navigation, and facilitate referrals to psychosocial and peer-support services.

View source

Similar papers

Open access Sep 2026

EXPLORING THE PARENTING STYLES FOR CHILDREN WITH VISUAL IMPAIRMENT: PARENTS’ PERSPECTIVE

This study suggests that parents of visually impaired children should be provided with mental health resources and counselling services to cope with the stress and emotional challenges and regular orientation sessions should be conducted to educate the parents of visually impaired children.

Kashif Iqbal, Syed Shabbir Akbar Zaidi, Ayesha Zia · 0 citations
Open access Sep 2026

‘The Picture Between Home and School is Miles Apart’: Reflections of Parents/Carers and Professionals in the UK on the Manifestation of Attention Deficit Hyperactivity Disorder in Girls

Improving current ADHD diagnostic assessments and criteria to reflect this presentation would benefit diagnostic inequalities and access to care for females with ADHD.

Tamara Williams, R. Bevan-Jones, L. A. Livingston et al. · 0 citations
Open access Sep 2026

Experiences of Parents of Children with Cancer During Their Child’s Illness: A Qualitative Interview Study in a Spanish Context

Background/Objectives: Childhood cancer profoundly affects families, particularly parents, who assume demanding caregiving roles associated with significant emotional and social burden that remain underexplored qualitatively. To explore the experiences of parents of children with cancer during the disease process: diag...

Fernando Santamaría-Fraile, Rosa M. Cárdaba-García, Inmaculada Pérez et al. · 0 citations
Sep 2026

Pre-diagnosis emotions and experiences of parents of children with immunodeficiency disorders: A qualitative study.

It was found that parents of children with immunodeficiency disorders experienced negative emotions and experiences prior to diagnosis, and parents' experiences were characterized by a perceived lack of control over their children's recurrent illnesses.

Didem Coşkun Şimşek, Filiz Polat, Gülcan Bahcecioglu-Turan et al. · 0 citations
Open access Aug 2026

RESOURCE PROFILE OF PARENTS OF CHILDREN WITH AUTISM SPECTRUM DISORDER: COPING STRATEGIES AND PERCEIVED SOCIAL SUPPORT

Raising a child with autism spectrum disorder (ASD) is associated with prolonged psychoemotional strain, the effective management of which largely depends on parents’ internal and external resources. Objective. To determine the characteristics of coping strategies and perceived social support in mothers and fathers of...

R. Kozhukhar · 0 citations

We use cookies to run the site and, with your consent, for analytics and to show ads. See our Cookie Policy.